A collaborative of pre-medical students trained to assess rare disease patient
medical records and assist in the development of natural histories, at the
University of Notre Dame's Center for Rare and Neglected Disease.
I am so sorry to hear that Ty has passed. His friendship these past few years has been a true blessing. I’ve enjoyed his several visits to Notre Dame and seeing him at the NNPDF conferences. Your strength and perseverance has been an inspiration to me and our students. I will be keeping you in my prayers during this difficult time.
I’m so sorry for your loss. Although Tyler is no longer physically with us, his brave spirit and story has left me irrevocably marked. You and your son has been an inspiration to many and I believe us all better people for having known him. I’ll be praying
I am so sorry for your loss. Ty was such an amazing guy who just lit up the room. I remember meeting him for the first time in the research class and he was a big reason that I became really active in helping with rare diseases. I wish the best for you and your family in this time. Keeping you in my prayers!
I am deeply saddened by the loss of Ty. When I was part of Dr. Haldar’s team I didn’t directly work with him or his family, but I always looked forward to the updates on Ty. Hearing of his courage and smile always resonated with me and gave me strength to continue as i worked with my family who already experienced the loss of two children to NPC. I definitely keep Jenn and all else who loved Ty in my prayers at this time. I also pray for the continuance of all important research that will lead to a solution for NPC.
Ty was a blessing to everyone who had the fortune to meet him. I think it goes without saying that his limitless positivity and sense of humor was truly a joy to experience. Even though he is no longer with us physically, I believe his spirit and strength is embodied in all of the lives that he has personally touched. Thank you for sharing your story and your son with us – I will greatly miss Ty.
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